Interim Clinical Commissioning Policy: Sapropterin for phenylketonuria (all ages)

Closed 23 Apr 2020

Opened 24 Mar 2020

Overview

NHS England has launched a 30 day consultation on a draft interim policy proposition for Sapropterin for phenylketonuria (all ages), which we are proposing is further considered for routine commissioning.

The policy proposition has been developed with the support and input of lead clinicians and tested with a range of stakeholders including patients and carers. This approach has helped ensure that the views of key stakeholders have informed and influenced the development of the policy to date. Policy propositions for this treatment have been considered by NHS England previously, and since this was last under consideration a new independent evidence review and a full equalities and health inequalities impact have been developed, and these can be accessed below.

We now wish to test this further with wider stakeholders through public consultation. A decision about this policy will be made by NHS England following a recommendation from the Clinical Priorities Advisory Group (CPAG). Any decision will be interim depending on the final outcome of the NICE Technology Appraisal which will determine the final commissioning position.

The last day to respond to this consultation is 23 April 2020.

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Audiences

  • GPs
  • Nurses
  • Health visitors
  • Clinicians
  • Managers
  • Commissioners
  • Directors of public health
  • Pharmacists
  • Doctors
  • Midwives
  • Health care assistants
  • Healthcare scientists
  • Paramedics
  • Chiropodists/podiatrists
  • Dietitians
  • Occupation therapists
  • Orthotists
  • Orthopists
  • Prosthesists
  • Physiotherapists
  • Diagnostic radiographers
  • Therapeutic radiographers
  • Speech and language therapists
  • Childcare providers
  • Allied health professionals
  • Care-givers
  • Ophthalmic practitioners
  • Responsible officers
  • Clinical psychologists
  • Paediatric neuropsychologists
  • GP Practices
  • Clinical Nurse Specialist
  • Practice managers
  • Receptionists
  • Dental surgeons
  • Neonatal and maternity staff
  • Foundation trusts
  • Mental health trusts
  • Community healthcare trusts
  • Tribunal service
  • Clinical commissioning groups (CCGs)
  • Commissioning support units (CSUs)
  • Strategic clinical networks (SCNs)
  • GP Practices
  • Primary care
  • Care Quality Commission
  • Health Education England
  • Health Protection Agency
  • Local Government Association
  • Monitor
  • National Institute for Health and Care Excellence
  • Health and Wellbeing boards
  • Healthwatch (national and local)
  • Health and Social Care Information Centre
  • NHS Trust Development Authority
  • NHS England Partnership Organisations
  • National directors
  • Regional directors
  • Area Team directors
  • All NHS England Staff
  • All P&I staff
  • Policy leads
  • Voluntary groups
  • Community groups
  • Charities
  • Advocacy or support organisations
  • DH third sector strategic partners
  • Regulatory bodies
  • Academic/professional institutions
  • Employer representatives
  • Employee representatives
  • Trade unions
  • Deaneries
  • Higher education institutions
  • Royal Colleges
  • Service providers
  • All interested stakeholders
  • Pharmaceutical Industry
  • Local authorities
  • Social care providers
  • Patients
  • Carers
  • Service users
  • Retailers
  • Suppliers
  • Information providers
  • Information professionals
  • Informatics professionals

Interests

  • Specialised commissioning