PAEDIATRIC GIRFT Sickle Cell Disease, Thalassaemia and Rare Inherited Anaemia Questionnaire

Overview

NHS England’s GIRFT Sickle Cell Disease (SCD) and Thalassaemia Programme is working to deliver data-driven, clinically-led reviews of SCD and Thalassaemia services. The reviews will include Specialist Haemoglobinopathy Teams (SHT) and selected Local Haemoglobinopathy Teams (LHT) in England

The reviews will:

• Use data and insights to understand how services are delivered and how they compare with similar centres across the country.
• Highlight examples of good practice, identify challenges, and explore opportunities for improvement.
• Agree practical actions to support the development and delivery of high-quality SCD and Thalassaemia services.

Why your views matter

This questionnaire will help us build a clear picture of how your service is delivered. The information provided will inform a data pack that will be shared with you in advance of the review. We ask that the questionnaire is completed by an appropriate member of the SHT or LHT . There are two versions of the questionnaire: one for adult services and one for paediatric services. Please read the guidance document that was circulated via email. If you have any queries please contact: england.girft.central@nhs.net.