Proposals for Congenital Heart Disease Services

Overview

An easy read version of the consultation document is available here. Translated versions of the consultation document are available below.

In July 2016, NHS England published a set of proposals regarding the future commissioning of congenital heart disease (CHD) services for children and adults. They describe the actions which we propose to take in order to ensure a consistent standard of care for CHD patients across the country, for now and for the future.

We propose to do this by implementing national service standards at every hospital that provides CHD services. The effect of our proposals, if implemented, will be that some hospitals will carry out more CHD surgery and catheter procedures, while others, which do not meet the relevant standards, will stop doing this work.

The aim of this public consultation is to provide you with information about our proposals, and the potential impact they may have, if implemented, on the delivery of services, and to seek your views about our plans. 

During the consultation period we will be attending a range of events (see events list). We will also be hosting events including three large-scale face to face events and a series of webinars (online meetings) – please register via the links below.

Face-to-face events

The calling of a general election means that NHS England as a public institution entered the pre-election period on midnight of Friday 21 April. This means that, in line with the requirements of Cabinet Office guidance for the public bodies, while the consultation will continue and the materials will remain upon the NHS England website and responses will still be received, NHS England will not hold any events or attend meetings before the election has been completed.

This means that the events that were planned between the 6 May and 25 May will not now be happening. The events that had been scheduled to take place will be reorganised for after 8 June. We are contacting organisations and venues to rearrange suitable dates soon after the election.

Please find below revised events for the CHD consultation after the general election; some events require registration so that we know the numbers of attendees:

• 14 June, 5.00pm – 7.00pm : Wrexham Patient, Public and Staff event, Holt Lodge Hotel - to register for this event please email england.congenitalheart@nhs.net.
• 15 June, 3.30pm – 6.00pm : Blackpool Patient, Public and Staff event, Lancashire Cardiac Centre, Blackpool Hospital.
• 19 June, 2.00pm – 5.00pm : Bristol Patient, Public and Staff event, Education Centre, Bristol Royal Infirmary.
• 22 June, 1.00pm – 3.00pm : Lincolnshire Patient, Public and Staff event, New Life Centre Sleaford – to register for this event please email england.congenitalheart@nhs.net.
• 24 June,  11am - 2pm : Royal Brompton Patient and family event, Royal Brompton Hospital - to register for this event please email mail@thebromptonfountain.org.uk.
• 27 June, 6.30pm – 8.30pm : Newcastle Patient, Public and Staff event, Newcastle Civic Centre.
• 27 June, 5.30pm : Leicester, Leicestershire, Rutland Joint OSC, Leicester City Council.
• 28 June, 6.30pm – 8.30pm : Middlesbrough Patient, Public and Staff event, St Mary’s Centre, Corporation Road, Middlesborough.
• 30 June, 1.30pm - 3.30pm : Nottingham Patient, Public and Staff event, The Wallace Room, The Education & Conference Centre, Nottingham University Hospitals, City Hospital Campus - to register for this event please email ft@nuh.nhs.uk
• 1 July, 1.00pm - 4.00pm : Leicester Patient and Family event, Glenfield Hospital to register for this event please email england.congenitalheart@nhs.net.
• 11 July, 6.30pm : Kensington & Chelsea OSC, Chelsea Old Town Hall.
• Date and time to be confirmed : Joint Yorkshire and the Humber OSC, Leeds City Council

There are further events being arranged which will be posted on this page as the details are confirmed. 

Translated consultation document

• Gujarati
• Hindi
• Polish
• Punjabi
• Tamil
• Urdu
• Welsh

Young People CHD

So that children and young people are able to understand the proposals and share their thoughts we have created the Young People CHD website with an animation and a secure portal that can be used by them to tell us how they feel.